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Supporting our heroes every step of the way

Help us provide lifelong support to people with congenital heart disease and their families.

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Sign-up today to join our CHD community and access supports and service.

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All our services are free! Your donation will help ensure this remains possible.

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Your fundraising support is vital to our work. Here’s how you can help.

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Going to School Manual

Anxiety around school Facebook (Presentation (169))

A plan to provide all the information
the teaching staff need to manage
your child's care at school

More information

Global CHD Awarenss Month

14th Feb (275 x 250 px)

Grow awareness of CHD and help raise funds for Heart Children's services with an event in your workplace, school, college or community

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Paul Gillen Bursary

Paul Gillen (2)

Applications are now open for the 2026 Bursary. Closing date for entries - 14th February.

How to apply

The Beat Goes on 2026

2026 (2)

Enjoy an interactive day sharing with others in the CHD
Sat, 21st Feb in Chartered Accountants Hse, D2.

Register to attend

Practical Skills Parent Workshop

Workshop FB

View the programme & register to attend on Sat 28th Feb in Clayton Hotel, Galway

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European Summer Camp

ESCamp

Carlingford Adventure Centre10-17th July.

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Children’s Play
Therapy Fund

Children who have been through repeated surgeries and long-stays in hospital can experience levels of anxiety and fears that are difficult to address.
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In-hospital
Respite Fund

When a child is seriously ill and in-hospital, there’s only one place you can be and that’s right by their side, 24/7.

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Psychology
Support Fund

The psychological impact of having a child with a long-term condition can be far reaching and the affects of the trauma may not even be evident.

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  • Congenital heart disease is a general term for a range of birth defects that affect the normal way the heart works.
  • The term congenital means the condition is present from birth.
  • It is the most common birth defect worldwide.
  • It is not one condition. It refers to a set of over 40 different structural issues in the heart and every child will have a different presentation.
  • It affects one in every 100 babies born in Ireland per annum which equates to approx. 500-600 children born annually.
  • Half of these will require open heart surgery to sustain their precious young lives.
  • Over 450 open heart surgeries are carried out annually on children from birth to age 16 at CHI Crumlin.
  • 70% of all cases are now diagnosed at the first maternal scan.
  • There are almost 19,000 people living with congenital heart disease in Ireland. Approx. 2,421 are complex cases.
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