When your child is given a diagnosis of CHD, it presents you with a different set of life and parental challenges than those you will have expected. The news and the management of your child’s care can have a traumatic impact on you and your family. Our experience is that the whole family unit requires support to protect their psychological wellbeing. Heart Children is focused on responding to these needs and offers a range of services to help people with CHD - and their families - to live confidently, stay well and enjoy life to its fullest.
We work to build a community for these groups where they can access peer support and information following discharge from hospital. Our peer support group meetings – Heart Family Fridays – take place in locations through the country on the last Friday of every month.
We provide psychological support for parents and people with CHD who are experiencing anxiety, depression and other issues relating to having or caring for someone with this serious life-long medical condition. Our service offering includes one-to-one sessions with a clinical psychologist, online information webinars and play therapy.
When children/adults are discharged from hospital on warfarin medication, we fund self-test devices which allow them to monitor their INR readings from home.