There are many sites on the web dealing with congenital heart defects. It can be helpful to research things on the Internet and use this information in conjunction with qualified advice. Remember that information gathered on the web should not be used instead of medical advice.
Below are some sites that may be of interest.
www.heartsplay.ie
Crumlin Hospital based children's support website
www.olhsc.ie
Our Lady's Hospital for Sick Children, Crumlin
www.tchin.org
American site, good general information
www.guch.co.uk
Teenagers and young adults
www.newcrumlinhospital.org
Parents lobbying for a New Crumlin Hospital
www.childrens-heart-fed.org.uk
UK site, very good information and facts
www.marfan.ie
Marfan Syndrome Support Group Ireland
www.htft.org.uk
Heart transplant families
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