 |
This booklet was published as a result of t a joint project with Down Syndrome Ireland, Our Lady's Children's Hospital and Heart Children Ireland. The booklet is intended to cater for the first two to three years of life. It is suitable for anyone with a newborn child suffering from CHD or Downs Syndrome.
This booklet is available from the HCI Office. Contact us on 1850 217017 |
PUBLISHED BOOKS OF INTEREST - CHILDREN
We have a limited number of books available that may be of help to your child. One in particular, 'Operation Fix It', may be of some help prior to surgery. This book would probably be suitable from 7/8 years up. The book, 'Operation Fix It', is published by the British Heart Foundation. It centres on Tom who has to go into hospital for a heart operation.
Another book, 'Rosie Goes Red, Violet Goes Blue' is aimed at the siblings of a heart Child and is geared towards the younger child. This book is published by the Children’s Heart Federation.
Have you read a book that may interest other families, let us know or do a review of it for us.
Contact us on 1850 217017
PUBLISHED BOOKS OF INTEREST - ADULTS
FUTURE CONDITIONAL BY JO HATTON
Yorkshire Art Circus, School Lane, Glasshoughton,
Castleford, England
ISBN: 1-898311-16-1
Joe Hatton is the longest surviving recipient of a heart lung transplant. Born with holes in her heart, she developed Eisenmenger’s Syndrome. This book tells Joe’s story of growing up with Congenital Heart Disease, and the problems she faced. It also describes coming to terms with the need for a heart lung transplant, and the transplant its self. In this book Joe describes both the technical issues of transplantation and the emotional issues, such as coming the terms with someone else dying, and learning to live a new life after the transplant.
I have read other books on peoples' heart transplants, and seen films about transplants. This is the first book, by a person with congenital heart disease, describing their experience. Due to this, I found this book particularly interesting. I found I could relate to some of the issues described in it.
Review: by Antony Horner
